Wednesday, January 30, 2008

The care and feeding of an aspie

Some people with Asperger's syndrome call themselves aspies. I think it is kind of a cute way of owning that you have been diagnosed with a mild form of austim.

My 11-year-old daughter has it, but she's never called herself an aspie. She's never really called herself anything because she doesn't like to talk about the diagnosis so much. She thinks the word "Asperger's" sounds like a bad-word sandwich, and she's right -- which is probably why "aspie" has caught on in the first place.

I have learned more about Asperger's in the past eight years than I have about anything else in my life. Still, no matter how much I learn and how much I read, there are no real answers. No one knows where it comes from or what causes it. From all the reading I've done, I know that there are tons of parents out there trying to figure out how to "manage" it by lessening its negatives and accentuating its positives. (For a brain disorder, it does have some nice features. Following rules without a fight comes to mind as a bonus.)

The one thing I can't figure out no matter how much I search is how to help my daughter make friends. No one has cracked that code yet for these kids. Either they don't care much about having friends (my daughter falls into this category) or they are desperately seeking friends, but put them off with the aspie odd behaviors and blunt assessments.

"Your breath stinks" is a perfectly acceptable conversation opener for an aspie. Doesn't get much more blunt than that.

Other kids don't get it and you know what? I don't blame them. Not one bit. If I was a kid with an aspie in my class, I probably wouldn't bother either. It takes a lot to be friends with someone who answers your questions only about half the time, rarely looks at you, never asks you how you are or what you want to do, and thinks a good conversation is recalling a verbatim dinner-table conversation from Thanksgiving three years ago.

I count my blessings that the kids around my daughter have been mostly understanding, but I say an extra thank you for something else: They haven't been cruel. At least not cruel enough to cause my daughter any pain or insecurity.

They just know she's different, even if they don't know why. They know she repeats herself a lot and can be a little rude. They think she's quiet; I'm quite sure some of them think of her as less than they are, even if they can't put it that way exactly. As a mom with the wisdom of childhood behind her, I see it and I know.

I always tell my daughter that I think she'll be very happy when she's an adult, and she can live her life to her own specifications. She'll be labled eccentric, I'm pretty sure of that. Maybe even be one of those odd ladies who lives in an apartment with five cats.

I hope she'll call herself an aspie and smile, even if it is just in her own mirror.

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